(BPRW) Howard University President Dr. Wayne A. I. Frederick to Deliver Remarks on Advancing Health Equity in Communities of Color To Rare Disease Organizations

Rare Disease Diversity Coalition Observes National Minority Health Month; Continue Work to Advance Racial Health Equity Informed by Experts

(Black PR Wire) WASHINGTON, DC – In observance of National Minority Health Month, the Rare Disease Diversity Coalition (RDDC) introduced right now that its steering committee assembly will function a keynote tackle by and dialogue with scholar, surgeon, and president of Howard University Dr. Wayne A.I. Frederick.  Composed of influential well being specialists and affected person advocacy executives, together with leaders from the Black Women’s Health Imperative, different ethnic minority well being teams, uncommon illness organizations, and medical associations, the Rare Disease Diversity Coalition (RDDC) was shaped in 2020 to assist tackle the extraordinary challenges confronted by uncommon illness sufferers of shade.

During its April 27 steering committee assembly, the RDDC will proceed its work to create options to affect the numerous well being disparities confronted by communities of shade, with a particular emphasis on the inequities that uncommon illness sufferers of shade expertise. The group will focus on its efforts to enhance the participation of communities of shade in uncommon illness analysis and scientific trials by addressing regulatory flexibility.  The assembly will focus on the coalition’s ongoing work to implement the priorities outlined in its 2021 “Charting the Path Forward for Equity in Rare Diseases” report and motion plan, aimed on the limitations that uncommon illness sufferers of shade face.

“I, along with my fellow RDDC steering committee members, look forward to hearing Dr. Frederick’s remarks on advancing health equity for communities of color. His robust body of research focusing on narrowing racial, ethnic, and gender inequities in cancer care outcomes, coupled with his sickle cell anemia patient experience and advocacy, will enable him to present a uniquely substantive and empathetic perspective with the RDDC on April 27,” mentioned Linda Goler Blount, president and CEO of Black Women’s Health Imperative.  

The Rare Disease Diversity Coalition helps the work of HBCU medical faculties, corresponding to Howard University, in serving to to result in systematic coverage adjustments to tackle the racial inequities skilled by individuals of shade with uncommon ailments. 

 

About the Rare Disease Diversity Coalition

More than 30 million—or 1 in 10—Americans have a uncommon illness. For uncommon illness sufferers of shade, racial disparities have brought on a disaster. The Black Women’s Health Imperative launched the Rare Disease Diversity Coalition to tackle the extraordinary challenges confronted by uncommon illness sufferers of shade. The RDDC brings collectively uncommon illness specialists, well being, and variety advocates with business leaders to determine and advocate for evidenced-based options to alleviate the disproportionate burden of uncommon ailments on communities of shade. To study extra, go to: www.RareDiseaseDiversity.org

 

About the Black Women’s Health Imperative

The Black Women’s Health Imperative is a nationwide non-profit group devoted to advancing well being fairness and social justice for Black ladies throughout generations, by means of coverage, advocacy, schooling, analysis, and management improvement. The group identifies essentially the most urgent well being points that have an effect on the nation’s 22 million Black ladies and ladies and invests in one of the best of one of the best methods that can accomplish its objectives. www.bwhi.org 

 

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